Welcome to Rare-Disorders.com, your one stop information center for rare diseases. Although the internet has made information about many of the more common ailments such as cancer, heart disease, strokes etc, much more readily accessible, there has until now been a shortage of good solid information on many rare disorders.
Many disorders such as Galactosemia, Kernicterus, bullous pemphigoid, spina bifida and xeroderma pigmentosum, do not benefit from the same level of publicity as some of the more prevalent conditions. Here at rare-disorders.com, we aim to help you find the information you are looking for so that you can better understand the condition.
If you, or a friend or family member are suffering from a rare disease, then access to good information will be high on your list of priorities. Information such as causal effects, treatment, diet and environmental considerations can all make a great difference not only to understanding the disease and the treatment you choose but also to your quality and enjoyment of life.
When you need to know about a rare disease then good quality information is essential, so that you can make informed choices and decisions. We aim to provide that information and help you along the road to a better understanding of the condition and the options that are available.